It has been rather busy lately with massive amounts of appointments for each of the kids. Our schedules are starting to clear up further to make way for other activities around the corner which is such a relief. For example, we had our 6 year old last week have a major Asthma attack. This was the worst one yet he's had. We rushed him to the ER to get checked up and they gave him some Steroids to reduce his inflammation within his lungs and once he had that his breathing released quicker than anything else we've ever seen release it before. We're currently seeing an allergist regarding potential allergies that a previous Pediatrician and urgent care thought it might be. The scratch and poke test turned out to not have any allergies show up..at all. However, this scratch and poke test didn't help us determine if there is any food allergies that might of shown us more.
There is plenty of diets that appear to help asthma or the severity of by excluding eggs, corn products, and more. We're going to try it out to see if that helps. Plus minimize the use of chemical cleaners around the house such as powder carpet odor boosts, sprays, and more. This can irritate and set off Asthma for him or make it worse off than it would be otherwise. One of the things we're going to talk to the geneticists and the pediatrician next is about this being related to Stickler Syndrome. There was some immune system things I found recently related to Stickler syndrome because if you think about it the tube running down to the lungs are made out of the same material collagen has a huge play into creating.
Other than that we have yet to pick out a new pair of glasses for Colin yet. Our trip to the local stores was unsuccessful due to in store product limitation. Lots of the glasses we wanted to try out were not in house or had to be ordered. Quite a bummer considering you won't even know what they'd look like otherwise! They need more of these options in stores for kids to choose from. All additional glasses were lacking the extra build up bridge over the nose to help his lack of. Thus, we left empty handed for now. He at least has the basic pair that presses his eye lashes into his eyes constantly.
We're still waiting to hear back from the insurance regarding his Genetic tests being approved. Once again, if that doesn't pan out we're going to have to fork out around $5-8K per gene tests. There's a basic 5 tests that needs to be screened which means..lots to save up for! Not even including ourselves and the rest of the boys being screened for this to. We are approved for his upcoming ERG to have a basic idea of the health of his Retina's with this screening. It's a pretty impressive screening procedure. I'll post more about how it works later. Also, they're doing an exam under anesthesia to see further the health of his eyes with a Retina Specialist as well as an eye Geneticists and our Neuro Ophthalmologist within the same room. He has this consistent light sensitivity issue that has been long ongoing since he was a newborn. As our specialist has called it "very perplexing" and they want to get to the bottom of it.
That is all for now..haha..lots but still all for now. We're close to arranging more appointments for other specialists and just taking a quick few day breather from it all in the time being. Next one up is the Physical Therapist and Occupational Therapist...
There is plenty of diets that appear to help asthma or the severity of by excluding eggs, corn products, and more. We're going to try it out to see if that helps. Plus minimize the use of chemical cleaners around the house such as powder carpet odor boosts, sprays, and more. This can irritate and set off Asthma for him or make it worse off than it would be otherwise. One of the things we're going to talk to the geneticists and the pediatrician next is about this being related to Stickler Syndrome. There was some immune system things I found recently related to Stickler syndrome because if you think about it the tube running down to the lungs are made out of the same material collagen has a huge play into creating.
Other than that we have yet to pick out a new pair of glasses for Colin yet. Our trip to the local stores was unsuccessful due to in store product limitation. Lots of the glasses we wanted to try out were not in house or had to be ordered. Quite a bummer considering you won't even know what they'd look like otherwise! They need more of these options in stores for kids to choose from. All additional glasses were lacking the extra build up bridge over the nose to help his lack of. Thus, we left empty handed for now. He at least has the basic pair that presses his eye lashes into his eyes constantly.
We're still waiting to hear back from the insurance regarding his Genetic tests being approved. Once again, if that doesn't pan out we're going to have to fork out around $5-8K per gene tests. There's a basic 5 tests that needs to be screened which means..lots to save up for! Not even including ourselves and the rest of the boys being screened for this to. We are approved for his upcoming ERG to have a basic idea of the health of his Retina's with this screening. It's a pretty impressive screening procedure. I'll post more about how it works later. Also, they're doing an exam under anesthesia to see further the health of his eyes with a Retina Specialist as well as an eye Geneticists and our Neuro Ophthalmologist within the same room. He has this consistent light sensitivity issue that has been long ongoing since he was a newborn. As our specialist has called it "very perplexing" and they want to get to the bottom of it.
That is all for now..haha..lots but still all for now. We're close to arranging more appointments for other specialists and just taking a quick few day breather from it all in the time being. Next one up is the Physical Therapist and Occupational Therapist...
