Friday, November 2, 2012

Gluten intolerance with Autism is exhasting!

Today is really an attempt to rest, recover, and recoup lack of sleep that didn't happen last night as Colin was screaming, fussing, constantly inconsolable like he was around 2-3 years of age.  He'd have these massive night terrors but now I'm starting to think there's something more to it.  He flops around from side to side trying to get comfortable but still gets upset, starts screaming, crying, and it's like he's in physical pain but he can't explain it to me.

We've had to put him back onto a gluten based diet to determine if as well as how severe this diet is on his body.  It's honestly night and day as just as we started to see our boy come a little out of his world he's forced even harder back into it, if not further into this realm.  He has started to use 1 word questions, answers, concerns, responses.  Meltdowns are greater from 15-30 minutes to typically off/on within a few minute breaks in between of hour long non stop meltdowns.  Trust me, it's easier to read about it and this isn't being blown out of proportion.  NOTE: If anyone ever wants to say that we're "blowing these medical conditions out of proportions," they have their head far underground in the sand!

What is really hard is to see him using fewer and fewer words.  Yesterday was a peak of frustration for him where I asked him if it was hard to say words he wants to say and he shook his head yes.  He has been using only 1 word for everything right now for which I have to remind him with patience "use your words" where he'll become angry and start pointing at everyone angrily with out the words to say something about it.  This is not how he's been and even many new medical professionals we have over seeing him now don't have this history with him which frustrates me greatly to have them have that first hand recognition of what all he's gone through and dealing with.

I think at this rate it's time to ask the Doctor to speed up this blood work testing and get that done sooner rather than dragging this one.  Otherwise, it's like giving your son crack and expecting him to be a normal functioning child.  It just doesn't work!  It's exhausting between everything else we have to juggle limiting us to not going out or doing much because it's that much harder to juggle.  Forget having 4 kids, we've got that figured out in public.  It's juggling Colin running off playing in puddles or filling holes with dirt 30 yards away from us because he's more into that than walking and staying with us.  Halloween for example, he was no longer interested in Halloween trick or treating once he saw the stream of rain water run off...that was that!  He was done with candy, Halloween, trick or treating, and was all about the rain water run off on the road.

Not much more to say.  I have loads of homework to complete this weekend before another College week.  I don't want to do anything last minute so it's time to start it all now.  Colins super fussy and Mikes out working which means it's up to me to juggle it all at home.  Colin typically doesn't pass out until midnight with these sensory problems and if he even sleeps at night at all--and yes, he's 4 years old.  Thank God I've raised him in an attachment parenting as touch helps Autism and cosleeping still helps him calm down.  He'll even snuggle Braeten or Braeten will try to wake him up to play.  It's super cute, and I'll enjoy it while it lasts as this is never permanent and life passes away too quickly!

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On a side note, I've edited my blog in the past to attempt to please some people who are never satisfied and always complaining about anything I do.  I WILL NOT be editing this blog.  What says, goes.  It won't be edited as nothing I do makes them happy and really I'm in this to look out for my family.  Thus, enjoy the blog if you are once again reading this blog.  This is mine, not yours to edit as same goes for my life. 






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