The next step in the process for Colin's visits will be Occupational Therapy as well as Physical Therapy. Occupational Therapy will help his Sensory Processing Disorder, Physical Therapy will help with his muscle tone in order to prevent joint damage even Rheumatoid arthritis as Stickler Syndrome is a degenerative disorder the Physical therapy prevents the hyper mobility of his joints furthering into injuries or more body damages. Combined together, I hope he'll start to use his fork and spoon again. He has gotten to the point of completely rejecting them altogether which leads to him needing to be fed assisted otherwise he has a complete meltdown with horrible anxiety as it frustrates him greatly. It's not just something you can have a child with these problems 'snap out of it and just do it!'
Also, today is his third day back on Gluten foods as he has a blood test in 2 weeks. During this time his anxiety, as well as hysterical behavior, stomach diarrhea with no regular stools, and lack of 'listening' has severely night/day increased. I can't even explain how exhausting this behavioral change is! It makes all of your senses entirely exhausted and completely out of energy not even at certain portions of the day. When he's been on a strict diet his behavior has improved, communication has opened up, less fits and fussing, more eye contact, more focus in communication, and less sensory problems even meltdowns. Not to mention less complaints about tummy issues and a whole another list full.
On another note, we're going to also get Logan screened for Autism as well as Sensory Processing Disorder as he has always had these similar complaints the previous pediatrician had turned us down on..like everything else he always turned us down on. However, we have to still get some major Colin issues out of the way before we can even start to tackle Logan's again. At least we're in good hands with a great medical 'support' system.
I have to run to my health & fitness class for this evening. 2 midterm exams yesterday has extremely burned me out mentally and physically. However, there isn't such thing as rest when it comes to being a parent of 4 kids--1 with special needs in particular! Everyone have a wonderful evening.
On a side note, is it already Halloween tomorrow?!!! WHOLLY GUINNESS!!!
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