Today was the IEP review with Colin's Psychiatrist. She is in the process of setting up another full clinic once again to gauge more activities and help for her clients. We all feel very comfortable with her care and will continue on seeing her in conjunction with the Neuro Psychiatrist that I was able to not only get the insurance to approve with the help of the Psychiatrist but also the one we could get normally doesn't accept our insurance at all but he approved this one due to Colin's rare CDD possibility. Such a huge relief after fighting the Pediatricians office yet mostly the insurance declining it for the past 2 weeks over as they "didn't see it necessary" for his care. I've had enough of the Dr's saying no to me, and no will not be part of their vocabulary when it comes to something so important!
Moving on, the diagnosis is pretty much as discussed with her over the phone. As mentioned she says he is within the Aspergers criteria thus diagnosing him with that. I can't recall what the name of the 'scales' of 'criteria' from the questionnaire was. However, he did rate 139/150 [75 being the entry for the Aspergers criteria requirement which shows how high on that he lists] for one and 24/30 with 12 being the minimum requirement for diagnosis [?12? I think..]. She believes he might just have mild Aspergers and wants to observe him in a school setting to see how he social response and academically responds to the environment. If it doesn't, or further regresses that would indeed start to show that he just has the average but very high functioning healthy socialization with his Aspergers or he might have CDD as things could further socially decay. He has a diagnosis now, however, he is due to have a change in his Diagnosis within time. As they say, only time will tell. It's so hard waiting it out and at this time I find myself just enjoying those small things that used to occasionally bother me and even the repetitive discussions he rambles forever about just to carpe diem as who knows what the future might hold. Enjoy it now, as no one is guaranteed tomorrow or to be guaranteed it to be the same as their yesterday.
He also has Sensory Processing Disorder which obviously our next step we've been putting off is Occupational therapy and Physical Therapy. We've completed most major diagnosis so now we're working towards the daily maintenance within our schedule since our schedule is less intense with appointments as it's been. I would love one week with out 1-2 appointments or the need to speak with a medical professional. My phone is always off the hook now! Even while I was in NYC I was reciving inbound phone calls from school about my son Logan sticking his tongue at the bus driver to insurance declined the Neuro Psychiatrist. My job is never done.
She further discussed that he is looking to have signs of not only anxiety due to his Aspergers, vision problems, and Sensory Processing Disorder..but also he's showing signs of parent attachment disorder. The Psychiatrist acknowledged my healthy attachment with Colin [well, cosleeping, long term breastfeeding, and attachment parenting has been a huge involvement with Colin in every aspect since birth, and taking time off from not working has been a blessing towards giving my son this deep base to life. Because of this, he responds to touch well as soothing which is rare to have within Aspergers children or even adults. Thank God for all that time to 'attach' with my child! I will have plenty of time to return back to working once this important basis in my kids lives is established. College or now!]. She as briefed on the situation between Mike and his parents and how they're towards me. She is going to see both Colin and Mike to work upon attachment parenting and reconnecting and hard-wiring those connections of parent to child before further damage or the same path laid before Mike continues on between Mike and the boys.
Fathers relationships between children is so important. It's even more important for a father to be a positive mature example to their kids and know the detailed in's and out's of how to approach their kids in many aspects. What more of a challenge than a special needs child with Aspergers plus all the rest going on with him? Our family needs any healthy aspects as possible, not destructive or history to repeat itself again. Attachment Parenting Disorder If you think your family might have a problem with this as well, it's important to seek help and have your child be reassured. The Psychiatrist even informed me that no matter how deep of a bond or attachment I have with my child, it won't make up for the detached other parent half. Mike is open about this and excited to get started in reconnecting with his son. He has been slaving away at college to score many 4.0's or make income that his relationships with his kids have slipped. The more outside lack of support the further his presence with them has decayed. I'm happy to see this possibility for that to be restored after all we've all been through. If you think your family has something like this, get it checked out the sooner the better. Healthy connected attachment parenting is so rewarding and will end with positively confident children not insecure false confident children.
On other news, I have a 4 chapter midterm test on Monday along with 6 other pages of homework that I'm 4 pages into at this time. I need to cram more information back into my brain and hope it sticks until I take my test on Monday! I'm returning back to work on my Business Degree that I took a break off. The last time I attempted to return to college was the same day I found out that I had placenta previa with Colin. I was about 13 weeks along in his pregnancy, just laid off of work a few weeks prior to becoming pregnant with him, sitting down to discuss with a college advisor about transfers from previous college I've been attending and the degree of choice to attend classes. I was receiving unemployment so my attempt was to score the free college tuition while on Unemployment. That option fell through once I left the advising appointment I had bleeding for the evening and off/on for the next week that placed me on bed rest for about a month. It was scary, but things turned out safely as my placenta 'migrated' out of the danger zone and bleeding stopping. It was traumatic enough that I've took that time off from returning back into college.
Once I had him I knew it wasn't time to return back to work yet as there was something 'special' about his learning abilities as he'd suck information in super quickly. For example, by the time he was 16 months he'd say large words like umbrella and be able to tell you and point out what is upper case or lower case A-Z letters as well as sounds! Now with college, it's very refreshing to be back to work towards the ultimate life changing..and challenging goal! This time with no pregnancies, but just kids medical problems to juggle now. I just hope to find, afford, and juggle colin attending Pre-k now prior to Kindergarten to determine how everything will work out for him in Kindergarten.
I'm off to study now. Everyone have a wonderful evening and adventure filled Halloween week! I know we will here. We just visited our local pumpkin patch today.
No comments:
Post a Comment